CTSI-CN Informatics Seminar Series (GW/Webex)
Title: HIE-Supported Research: the CRISP Health Information Exchange Research Initiative Experience
Presenter: Ross D. Martin, MD, MHA, FAMIA
LUNCH WILL BE PROVIDED
Abstract: In 2016, CRISP, the health information exchange (HIE) serving Maryland, DC, West Virginia, and the region, received regulatory approval as the Maryland state-designated HIE to support clinical research. Since that time, CRISP has established a basic capability for offering clinical researchers access to CRISP tools and services to support more than a dozen studies. The most common study type involves following a cohort of consented patients using two core services: the CRISP Encounter Notification Service (ENS) to receive real-time alerts when a patient has been admitted to, discharged from or transferred within one of more than 100 acute care hospitals, long-term care, or outpatient facilities in the region; and the CRISP query portal to review and download clinical documents (such as discharge summaries, surgical, radiology and encounter reports, laboratory reports, medication lists, care summaries, etc.) related to these encounters. Ross D. Martin, MD, MHA, FAMIA, Program Director of the CRISP Research Initiative, will present on CRISP experience and the policy, technical and process challenges in making HIE-mediated data available to researchers. He will also discuss plans for developing new capabilities to support researchers as they seek access to data sets that are not currently available.